Interferon-based Therapy Lowers Lymphoma Risk in Hepatitis C Patients

2008-04-30 19:48:57

Interferon-based Therapy Lowers Lymphoma Risk in Hepatitis C Patients
By Liz Highleyman
Though research results to date are not entirely consistent, several studies
have found that people with chronic hepatitis C are at higher risk for malignant
lymphoma (Hodgkin's disease and non-Hodgkin's lymphoma, or NHL).
As reported in the December 2007 American Journal of Medicine, Japanese
researchers performed a retrospective study to determine the incidence of
malignant lymphoma and the relationship between lymphoma and HCV clearance with
treatment. The analysis included 501 consecutive chronic hepatitis C patients
who had not undergone interferon-based therapy and 2708 patients who had
received treatment.
Results
. In the untreated group, the cumulative incidence rates for malignant
lymphoma were 0.6% at 5 years, 2.3% at 10 years, and 2.6% at 15 years.
. Among interferon-treated patients with persistent HCV infection, the
respective cumulative incidence rates were 0.4%, 1.5%, and 2.6%.
. Among interferon-treated patients who achieved sustained virological
response (SVR), the lymphoma incidence rate was 0% at all 3 time points.
. The malignant lymphoma incidence rate was lower for the 1048 patients who
achieved SVR than for those with persistent HCV infection (P = 0.0159), and the
hazard ratio was also significantly lower (HR 0.13; P = 0.049).
Conclusion
"Our retrospective study is the first to determine the annual incidence of
malignant lymphoma among patients with HCV at 0.23%," the investigators
concluded. "Our results indicate that sustained virologic response induced by
interferon therapy protects against the development of malignant lymphoma in
patients with chronic HCV."
01/25/08
Reference
Y Kawamura, K Ikeda, Y Arase, and others. Viral elimination reduces incidence of
malignant lymphoma in patients with hepatitis C. American Journal of Medicine
120(12): 1034-1041. December 2007.
http://www.hivandhepatitis.com/hep_c/news/2008/012508_c.html

Hepatitis C: From Scientific Foundations to New Vistas in Treatment

2008-04-30 07:37:55

Hepatitis C: From Scientific Foundations to New Vistas in Treatment
PROGRAM OVERVIEW
The burden of hepatitis C virus (HCV) places new demands on clinicians to keep
up with knowledge of the virus and response to infection. This webcast explores
what is known about the HCV life cycle, host immune response to HCV, and
nonresponse to treatment. Learn how these factors influence response and inform
new directions in therapy. Updates on the latest STAT-C agents (eg, protease and
polymerase inhibitors) and other novel HCV treatments are also discussed.
http://www.clinicianschannel.com/pik/1813/index.cfm

Most Doctors Use Flu Test for Diagnosis

2008-04-30 00:58:22

Most Doctors Use Flu Test for Diagnosis
By Michael Smith, North American Correspondent, MedPage Today
Published: January 24, 2008
Reviewed by Zalman S. Agus, MD; Emeritus Professor
University of Pennsylvania School of Medicine.
ATLANTA, Jan. 24 -- Faced with a possible case of flu, nearly 70% of primary
care physicians ordered a flu test, the CDC said.
More than half followed up with a prescription for an antiviral drug,
usually oseltamivir (Tamiflu) but including two -- amantadine (Symmetrel) and
rimantadine (Flumadine) -- that are no longer recommended, the agency said in
the Jan. 24 issue of Morbidity and Mortality Weekly Report.
Amantadine and rimantadine were taken off the list of recommended flu
treatments early in 2006 because of high rates of resistance in circulating
influenza strains.
The implication, the CDC said, is that "more educational measures are
needed to make [primary care physicians] aware of the current treatment
recommendations."
The findings are based on responses to a mail survey from 730 physicians
in four of the country's 10 Emerging Infections Program sites -- in Connecticut,
Minnesota, New Mexico, and New York -- during the 2006-2007 flu season.
They show that the use of flu tests and prescribing patterns varied by
state and medical specialty.
Overall, 69% of the physicians reported ordering a flu test for patients
with a possible case of influenza. But that varied from 75.5% among
pediatricians to 69.8% among family practitioners.
The number of respondents in obstetrics/gynecology who ordered flu testing
was too small for a reliable estimate of patterns in that specialty.
The percentage who ordered testing also varied by state, with Minnesota
leading at 87.1%, followed by New York at 59.9%, Connecticut at 59%, and New
Mexico at 55%.
Doctors in practice more than 10 years were significantly less likely
(P<0.05) to order an influenza test than were doctors in practice for less than
a decade -- at 66.4% versus 76%.
More than half of the physicians -- 393 or 53.8% -- prescribed antiviral
drugs at least some of the time.
Likelihood of prescribing also varied by specialty. Family doctors were
more active, with 66.4% prescribing drugs, followed by 58.7% of internal
medicine specialists, and 41.7% of pediatricians.
Again, too few participants in obstetrics/gynecology prescribed antiviral
agents to form a reliable estimate, the CDC said.
When participants were asked what drugs they prescribed, 87% said
oseltamivir. Amantadine was a distant second, prescribed by 17.8%; 8.7% wrote
for rimantadine, and 5.3% prescribed zanamivir (Relenza).
Amantadine use was highest in New Mexico, where 43.2% of participants said
they prescribed it, followed by Minnesota at 16.6% and New York at 14.2%. Only
five of 78 participants in Connecticut prescribed amantadine and the CDC did not
calculate a percentage.
On the other hand, Connecticut doctors led in prescribing oseltamivir, at
94.7%, followed by Minnesota, New York, and New Mexico at 90.2%,
85.8%, and 70.3%, respectively.
The agency said the findings are subject to at least four limitations:
a.. Participants were primarily doctors in metropolitan areas, so the
results might not represent practice patterns in rural areas.
b.. The response rate was only 47.1%.
c.. The self-reports of respondents are subject to recall bias and might
not reflect actual services provided.
d.. The results do not reflect the healthcare practices of primary care
providers who are not physicians, such as physician assistants or nurse
practitioners.
They also pointed out that a majority of the primary care providers
surveyed used rapid antigen tests to guide treatment decisions for patients with
influenza-like illness. Those physicians should understand the limitations of
these tests, particularly the low sensitivity, when interpreting test results,
the CDC authors said.
Because rapid antigen tests produce incorrect results for 25% to 30% of
persons with influenza, primary care providers should use clinical judgment and
check reports of weekly influenza activity from the CDC and their individual
state health departments to guide their clinical decisions, they said.
No financial disclosure information was reported.
Additional source: Morbidity and Mortality Weekly Report
Source reference:
Fazio D, et al "Influenza-testing and antiviral-agent prescribing
practices -- Connecticut, Minnesota, New Mexico, and New York, 2006-07 influenza
season" MMWR 2008; 53: 61-5.
http://www.medpagetoday.com/InfectiousDisease/URItheFlu/dh/8099

Body art draft ordinance draws public comments

2008-04-29 21:25:57

Body art draft ordinance draws public comments
Hepatitis C, unsterile equipment top list of concerns
By Rachel Cohen , STAFF WRITER
Article Last Updated: 01/25/2008 03:13:11 AM PST
SAN LORENZO - Proper sterilization and hepatitis C were among residents' top
concerns about a draft ordinance on body art establishments at Wednesday's
unincorporated services meeting.
The ordinance lays out physical, hygiene and health standards for tatooing and
piercing businesses, said William Pitcher, Alameda County's environmental
protection chief. It also specifies that clients of the businesses be required
to give written consent.
The draft ordinance is modeled after Santa Clara County's because the state has
lagged in setting regulations for the businesses.
"There's basically no oversight," Pitcher said. "We're bringing these businesses
under county scrutiny and starting from scratch."
Practitioners now must prove they have tested negative for the blood-borne
disease hepatitis B.
Jorge Goitia, senior environmental health specialist, told Wednesday's group,
"Some of the practitioners will test the needle on themselves before they do it
on you."
Under state confidentiality laws, the practitioner does not have to prove he or
she does not have HIV/AIDS. Several audience members suggested the ordinance
also require practitioners to prove they do not have hepatitis C.
Pitcher said the public health department was nervous about adding hepatitis C
without proof it has been transferred with a tattoo needle.
"That may change tomorrow," he said.
The county's health officer, Dr. Anthony Iton, will be at the unincorporated
services meeting next month to discuss hepatitis C.
San Lorenzo resident Kathy Martins questioned the sterilization procedures and
businesses' sharing of body jewelry.
"I think these county ordinances can't be comprehensive enough," she said.
"Because, you know, if you give someone an inch. ..."
Concerns such as these also will be revisited at next month's meeting.
"There are different ways of sterilization. It is kind of a technical problem
for non-medical professionals," Pitcher added.
He later explained that the county's public health department is organized by
funded programs. Once the ordinance passes and receives funding, then the
department will investigate more how different facilities operate.
Unincorporated Alameda County has eight tattoo businesses, and there are 60 to
70 countywide. Beauty parlors that apply permanent makeup likely will be added
to the regulated businesses.
Pitcher said a full draft of the ordinance will be available on the county's
environmental health Web site within a few days. The county plans to discuss the
ordinance with all of the local city councils and bring it to the Board of
Supervisors by April.
Reach Rachel Cohen at rcohen@... or 510-293-2463.
http://www.insidebayarea.com/ci_8074611?source=rss

Transplant girl who has turned medical science on its head

2008-04-29 18:29:10

Transplant girl who has turned medical science on its head
By Lyndsay Moss
Health Correspondent
HAVING come through a liver transplant at the age of nine, Demi-Lee Brennan
expected she would have to take powerful drugs for the rest of her life to stop
her body rejecting the donated organ.
But the youngster has amazed her doctors and is now able to live without the
medication, in what experts describe as a "one-in-six-billion miracle".
Demi-Lee, now 15, is thought to be the first patient ever to take on her donor's
immune system, even swapping blood groups after her transplant operation.
It means that she can now get on with fulfilling her dream of becoming a rock
star.
Demi-Lee's problems began in 2001 after a viral infection caused her liver to
fail. The young girl, from Sydney, Australia, was lucky enough to receive a
donor liver from a 12-year-old boy who died from a brain injury.
But nine months later, she became seriously ill with a condition known as
pneumolysis, which causes the red blood cells to break down.
Tests were carried out which revealed the first surprise - her blood group had
changed from O-negative to that of her donor, O-positive.
Doctors at the Westmead Children's Hospital were then amazed to find that stem
cells from the new liver had penetrated Demi-Lee's bone marrow, leading to a
kind of natural bone marrow transplant.
Her immune system had almost totally been replaced - to the extent that she no
longer had immunity to diseases she was immunised against as a baby.
Her new condition meant she no longer needed to take the drugs to stop her body
rejecting the donated liver - drugs which over time can cause organ damage and
infection.
Dr Julie Curtin, the hospital's head of haematology, described her patient's
transformation as the "holy grail of transplants".
Demi-Lee's doctor, Michael Stormon, said their team was now trying to identify
how the phenomenon happened to see whether it could be replicated in other
patients.
He said: "That's probably easier said than done ... I think it's a long shot. I
think it's a unique system of events whereby this happened."
It is hoped that, as well as transplant patients, studying Demi-Lee's
immune-system swap could also help sufferers from immune diseases like multiple
sclerosis and Type 1 diabetes.
Far from stepping out of the spotlight after making medical history, Demi-Lee is
now hoping to appear on Australian Idol - their version of Pop Idol.
"I feel quite normal, it's almost like it never happened," she said. "I can't
thank the donor's family enough, and the doctors, for giving me this second
chance at life."
UNHEARD-OF SITUATION
Dr Andrew Bathgate
FOR a transplant patient to adopt the immune system of the donor is completely
unheard of.
What is known is that there can be a mixing of the immune cells outside of the
transplanted organ, which is known as "chimaerism".
If you look for the cells of the donor outside the liver, you can usually find
them. But that is very different from the stem cells of the donor liver
penetrating the bone marrow, as appears to have happened here.
There has been some work done in adult transplantation to try to improve the
acceptance of donor livers by also using bone marrow from the donor. But so far,
this technique has not met with great success.
What appears to have happened in the Australian patient is quite different. It
offers doctors the opportunity to study what has happened in this case to see if
it can help other patients. If they can find the mechanism by which this
occurred, it would be a significant advance.
. Dr Andrew Bathgate is a consultant transplant physician at Edinburgh Royal
Infirmary.
http://news.scotsman.com/latestnews/Transplant-girl-who--has.3710635.jp

Australian girl switched blood type after transplant: doctors

2008-04-29 07:42:52

Australian girl switched blood type after transplant: doctors
SYDNEY (AFP) - An Australian girl spontaneously changed blood groups and adopted
her donor's immune system after a liver transplant, in what doctors treating her
said Thursday was the first known case of its type.
Demi-Lee Brennan was aged nine and seriously ill with liver failure when she
received the transplant, doctors at a top Sydney children's hospital told AFP.
Nine months later they discovered she had changed blood types and that her
immune system had switched over to that of the donor after stem cells from the
new liver migrated to her bone marrow.
She is now a healthy 15-year-old, Michael Stormon, a hepatologist treating her,
told AFP. He said he had given several presentations on the case around the
world and had heard of none like it.
"It is extremely unusual -- in fact we don't know of any other instance in which
this happened," Stormon told AFP from the Children's Hospital at Westmead.
"In effect she had had a bone marrow transplant. The majority of her immune
system had also switched over to that of the donor."
An article on the case was published in Thursday's edition of the leading US
medical journal The New England Journal of Medicine.
Brennan's mother Kerrie Mills described the recovery as "miraculous" while the
patient herself told a news conference that doctors had given her life back to
her.
"I just can't thank them enough. It's like my second chance at life," Brennan
said.
Doctors who treated Brennan are interested to know if the case could have other
applications in transplant surgery, where rejection of donor organs by the
recipient's immune system is a major hurdle.
Stormon said it appeared that Brennan may have been fortunate because a
"sequence of serendipitous events", including a post-transplantation infection,
may have given the stem cells from her donor's liver the chance to proliferate
in the bone marrow, where blood cells develop.
The task now was to establish whether the same sort of outcome could be
replicated in other transplant patients, he said.
"The challenge for us now is to try and figure out how this occurred," Stormon
said.
One possibility is that the series of events she experienced all weakened her
immune system enough for the stem cells to migrate to the bone marrow and
proliferate, Stormon said.
These factors include the particular type of liver failure she had, a
post-operation infection with the virus cytomegalovirus, and immunosuppressive
drugs.
"To try to replicate that is easier said than done," Stormon said, but added the
case could still potentially be of crucial importance.
"The holy grail of transplant medicine is immuno-tolerance. She exemplifies that
this can occur."
http://afp.google.com/article/ALeqM5hDSMTLf9ZPhxPRc0vqBgvc9NEFRw

Secretary's Advisory Committee-National Health Promotion and Disease Prevention Obectives

2008-04-29 06:25:35

Secretary's Advisory Committee-National Health Promotion and Disease Prevention
Obectives
The first meeting of the The Secretary's Advisory Committee on National
Health Promotion and Disease Prevention Objectives for 2020 will be held on
Thursday, January 31, from 9:00 a.m. to 5:30 p.m., and Friday, February 1,
from 9:00 a.m. to 4:00 p.m. The two-day meeting will take place at: U.S.
Department of Health and Human Services, Hubert H. Humphrey Building, Room
800, 200 Independence Avenue, S.W., Washington, D.C. 20201. A Federal
Register Notice (FRN) announcing the meeting was published on January 25. A
copy of the FRN is attached for your information and distribution to individuals
who may be interested in attending the meeting. The membership of the
Secretary's Advisory Committee on National Health Promotion and Disease
Prevention Objectives for 2020 will be made available to the public as it
becomes available.
If you plan to attend the two-day meeting, please pre-register through the
Healthy People website at http://www.healthypeople.gov and click on
the "Coming Soon Healthy People 2020" icon to proceed to the registration
website. Registration is currently open and will close on Monday, January 28,
at 5:00 p.m. E.S.T. You are encouraged to register early as space for the
meeting is limited. Registrations will be accepted until maximum room capacity
is reached. A waiting list will be maintained should registrations exceed room
capacity.
We hope that you are able to attend. If you should have questions, please
contact Carter Blakey at 240-453-8254 or Emmeline Ochiai at 240-453-8259

HGS Stock Dips After It Ends Hepatitis C Test

2008-04-28 18:10:07

HGS Stock Dips After It Ends Hepatitis C Test
Concern Over High Dose Causes 44 Percent Swoon
By Cecilia Kang
Washington Post Staff Writer
Thursday, January 24, 2008; Page D01
Human Genome Sciences' stock price plunged more than 40 percent yesterday, after
the company announced it would abandon higher-dose tests of its hepatitis C drug
because an independent monitoring group expressed concerns about lung-related
side effects.
Shares of the Rockville biopharmaceutical company dropped 44 percent, or $4.40,
to $5.62, hitting a 12-year low after adjusting for dividends and stock splits.
Human Genome, which in 16 years has not yet brought a commercial drug to market,
said that during a routine review, an independent drug-monitoring committee
recommended lower doses of Albuferon for chronic hepatitis C. The committee said
it found "serious pulmonary adverse events" that were higher in the treatment of
a trial group got arm injections of 1,200 micrograms of the drug every two
weeks, compared with a separate group given doses of 900 mcg.
The company gave few details on the rate of side effects but said the pulmonary
problems were "expected and rare" in interferon therapy.
H. Thomas Watkins, president and chief executive of Human Genome Sciences,
described the announcement as a "hiccup" and said the recommendation by the Data
Monitoring Committee isn't expected to delay the Phase 3 trial of Albuferon,
which was predicted to finish by spring 2009. Filing for global marketing
approval is expected to be complete by fall 2009.
Watkins said the company had expected to market the lower dosage of the drug and
that the trials for the higher drug won't impede progress for the 900-mcg dose
or Food and Drug Administration approval.
"The data committee didn't express any concerns with the 900-mcg dose, and for
some time we've viewed the 900-mcg dose as the most likely marketed dose,"
Watkins said in an interview. The company began its first trial of the drug in
March 2001 and is in the final stages of trials before it can get approval from
the FDA to sell the drug commercially.
Human Genome Sciences, which has 770 employees, this year entered its most
critical stage, with the hepatitis C drug and a drug for treating lupus in final
trials before commercialization.
Han Li, a research analyst in New York for Stanford Group, said the concerns
raised could affect perceptions of the drug.
Trial participants could drop out of the tests because of worries over the
drug's side effects, which could affect the progress of the trials, Li said.
When taken to market, doctors may think of the problems faced during the trials
and weigh the potential safety concerns against the convenience of taking
Albuferon once every two weeks. Its competitor, Roche's hepatitis drug Pegasus,
is taken every week.
"If you want to get a drug to compete with Pegasus, which dominates the market
and has been out for a few years, you have to have an advantage over the current
therapy," Li said. "I don't know if a physician would trade the risk of
pulmonary adversary risks for taking the drug from weekly to biweekly
treatments."
Another analyst said the market overreacted to the news and that trials for the
900-mcg dose have been promising.
The analyst, William Sargent of Banc of America, said Human Genome Sciences said
the efficacy of its lower-dose treatments has been above 90 percent, which
should be enough to file for regulatory approval.
http://www.washingtonpost.com/wp-dyn/content/article/2008/01/23/AR2008012303420.\
html?wpisrc=rss_business

Stance at a Glance: Compare the Candidates

2008-04-28 17:18:06

Stance at a Glance: Compare the Candidates
Our comparison chart of all the candidates and where they stand on key health
issues
http://www.webmd.com/election2008/comparecandidates

'I probably know too much'

2008-04-28 14:34:00

'I probably know too much'
Faith, family help Twin Falls mortician face his own possible fate
By Nate Poppino
Times-News writer
Mike Parke was 16 when he started his first mortuary job. At 30, he achieved his
longtime dream, opening his own mortuary: Parke's Magic Valley Funeral Home at
2551 Kimberly Road in Twin Falls.
Today, at age 40, Mike has been forced to give up that dream, replacing it with
a harsh reality. Initially given nine months to live after being diagnosed with
a genetic disorder, Mike has pushed on for two years, selling his business to a
carefully selected family and striving for one thing - a liver transplant.
His career has always centered on the deaths of others. But for the past two
years, Mike has been forced to confront his own mortality, something neither he
nor his wife and 10-year-old daughter were ready for.
Changes
To those who know him, Mike Parke appears a different man.
He's lost quite a bit of weight. He's easily fatigued. He can't stay on his feet
very long before fluid builds up in his abdomen and makes his ankles swell. And
depending on what kind of day it is, he's lucky to be mobile at all. Some days,
he can't get out of bed.
Lately, things have been good and Mike is again a familiar face in his former
funeral home, now run by Jared Clinger. He stays away from embalming the bodies
- who knows, he says, what diseases might lurk in wait for him? But he helps
families create video tributes to their loved ones, and greets mourners at the
door with a program and a word.
At least it's something, he says during a break, seated at a table in the
mortuary with his wife, Catherine. But he misses the days when he had a hand in
every part of the business.
Those days were interrupted, Mike says, by a genetic disease called
hemochromatosis, the genes for which he only received from one of his parents.
His body absorbs more iron than it can process, he says, leaving the excess to
build up in his bloodstream and his organs - particularly his liver.
The disease came as a surprise, he says, as no one else in his family developed
it. Five years ago, a life insurance company denied him coverage after a simple
blood test showed possible liver problems. But the extra iron didn't make its
presence known until December 2005, when he had his gallbladder removed. Doctors
discovered that he had stage four cirrhosis of the liver, which is more commonly
seen in heavy drinkers.
"Mine was white and blistery, like sheet rock," he says.
"Stage four" was just a number at first. But he soon learned his liver was
scarred and dying, and the only solution was a transplant. As he found out, such
things are not easy to arrange.
Waiting
Mike and Catherine started traveling to San Francisco once a month to see a
trauma specialist. He joined the hospital's organ transplant list and the
specialist started an intensive regimen or medication.
"It was handfuls a day, just to keep going," he says.
But the pills wouldn't fix things by themselves. The key was getting approved
for a transplant, and the couple was learning just how hard that would be.
The first challenge was clearing the financial hurdle. The Parkes' out-of-pocket
expenses last year were $25,000, with more expected this year. They'll have to
pay $38,000 of the expense of procuring a new liver, and anything above the
first $250,000 of the actual surgery.
But it's the medical side of things that's a problem. Mike's blood type is
O-negative, a type shared by only 7 percent of the U.S., according to the Blood
Centers of the Pacific. Organs of that type can be shared among people of any
blood type, Catherine says. But Mike himself can only accept an O-negative
liver. He competes with all other blood types, but they don't have to compete
with him.
He also has to be a size match with the donor, as well as match the organ type -
a separate issue. He needs the whole organ, meaning the donor must not have been
dead long. Add in a modifier, known as a MELD score, that ranks Mike just below
the highest level of need, Catherine says, and the whole transplant process
stalls.
"They've told us he will pretty much need to be in a coma before they will
transplant him," Catherine says.
San Francisco's organ list was lengthy, so the Parkes decided to change one of
the few things they could control. In August 2006 Mike's treatment was shifted
to LDS Hospital in Salt Lake City. It's a shorter flight - a good thing, because
if the hospital calls with a possible organ, the Parkes must be there within
about three hours.
That's what happened in November 2007. Mike, who shares the overall liver
transplant list with 60 others at LDS, had made it to No. 2 there. The call
came, and the doctors were prepped for a surgery when they determined that the
tissues weren't a match.
Two months later, Mike has dropped to No. 9 - ironically, because his health has
improved. It's a mixed blessing, Catherine says, that tears her apart.
"The problem is, do you pray for wellness, or pray for illness so he can get a
liver?" she asks.
God and family
One might think that a mortician would be better-equipped than most of us to
face death. But that's not true, Mike says. Having spent his career helping
people deal with death, he's heard others say how hard it is for people to come
to terms with their own mortality. But the knowledge he gained from looking upon
people's funerals, he says, left him completely overprepared to confront his own
possible death.
It's one thing to help others plan for their families, to comfort grieving
spouses and pay proper tribute to those who have passed on. But now Mike, only
40 years old, has to face his own terminal illness and make the hard decisions
himself.
"I probably know too much, and it sent me into deep depression," he says.
He's doing better now. That's partly due to the family's deep faith. Mike is a
member of the Church of Jesus Christ of Latter-day Saints. Catherine belongs to
the Seventh-day Adventists. And his daughter, Elizabeth, attends school at
Immanuel Lutheran Church.
All three may have different perspectives on the Lord, but they know two
important things: He exists. And He might be able to help.
"You have to turn this over to the Lord, because it's nothing you can control,"
Mike says.
That family bond is important to Mike right now. He had one other revelation as
a result of his illness: Not only did his career as a mortician teach him too
much about the end of his life, but it also stole some of his life away - his
relationship with Elizabeth.
Opening and building up a private mortuary was hard work, he said. In the
process, he didn't always have time to walk life's path with his daughter as she
grew up. All the missed opportunities built up, and found release in April.
Elizabeth, upset with her father, asked one simple question that has stuck with
Mike ever since.
"'How come we always cancel vacations every time someone dies?'" Mike says,
tearing up. "It slaps you right in the face, because you know that's innocence."
Since that conversation, Mike says, he's become closer to his daughter and her
needs. Should a liver become available, Elizabeth's parents have arranged for a
friend to watch her during the three months they'll spend in Salt Lake City.
Their daughter is well aware of what the family faces, Catherine says. And the
family as a whole is taking as much time as they can for themselves.
"We try very hard to make sure Elizabeth's life is as full as it can be,"
Catherine says.
It's hard to say who relies on the family and faith support more, Mike or
Catherine. After he suffered a bacterial infection, Mike's doctor warned the
next might kill him. Having kept him so much longer than doctors first thought,
Catherine now spends her days "sitting on the edge of hope," and placing her
husband on every prayer list she can.
"I don't honestly see Him taking Mike out of my life, but if He does, there's a
reason and we go from there."
Nate Poppino can be reached at 735-3237 or npoppino@....
http://www.magicvalley.com/articles/2008/01/20/news/top_story/20633213.txt

Two men give all they can for this life

2008-04-28 06:06:34

Two men give all they can for this life
Nephew donates half his liver to save uncle
By HILARY WALDMAN
(Editor's Note: The following story, detailing the successful liver transplant
operation involving recipient Daniel Gray of Springfield and his donor nephew,
Corey Gray, is reprinted with permission of the Hartford, Conn., Courant. It was
a historic procedure as it marked the first time a liver transplant had ever
been performed at Yale-New Haven Hospital. Accompanying photos were taken by
Stephen Dunn of the Courant staff.)
.
Dr. Sukru Emre slices an 8-inch incision through Corey Gray's six-pack abs,
splaying the young man's belly like a butterflied leg of lamb. Tightening heavy
metal clamps that anchor flesh and muscle to either side of Gray's ribs, Emre
reveals the healthy liver - the main event of the day's surgery.
It is a risky procedure - and one with no medical benefit to Corey Gray. The
goal is to use half of Corey Gray's healthy liver to save the life of his dying
uncle. Since the procedure was tried on adults a decade ago, at least two living
liver donors have died.
But a shortage of livers from deceased donors has forced doctors to take a hard
look at the Hippocratic oath and take a little poetic license when it comes to
the basic underpinning principle of medical ethics: "Primum non nocere" - Latin
for "First, do no harm."
As Emre painstakingly inches through the center of Corey Gray's liver using
electric cautery and ultrasound blades to dissect tissue and vessels while
keeping blood loss to a minimum, he can only do his best.
"If we were to have enough donors, we would be crazy to do this operation," Emre
said in English, heavily laced with the accent of his native Turkey.
But in a nation with more than 17,000 people on a waiting list for a liver
transplant - almost 2,000 a year die before a donated liver becomes available -
living-donor surgery sometimes offers the only hope.
Emre brought the ability to perform living-donor liver transplants to
Connecticut when Yale-New Haven Hospital recruited him from Mount Sinai Medical
Center in New York last summer. At Mount Sinai, the 55-year-old surgeon became a
leader in the field, performing 650 liver transplants, including 250 from living
donors.
But at his new home in downtown New Haven last Tuesday morning, Emre wakes up
with first-day jitters. He has done this operation hundreds of times. He has
rehearsed this one in his head a thousand times or more.
But he is about to perform the first transplant from a living donor in
Connecticut and he does not want anything to go wrong - not for his patients and
not for Yale-New Haven Hospital, whose reputation as a transplant center was now
riding on the tips of his gloved fingers.
Emre is recovering from the flu and still dogged by a stubborn cough when he
starts to isolate Corey Gray's liver in Operating Room 11 shortly before 10 a.m.
After almost three hours of tedious work - cut a bit of tissue, staunch the
bleeding, gently probe the purplish tissue for the next safe place to cut - Emre
removes a large lobe of Corey Gray's liver and lifts it with two hands. A nurse
fills a blue plastic bowl with ice cubes and covers the ice with a sheath that
looks remarkably like a plastic hotel shower cap. Emre gently places the
precious tissue in the bowl.
Bathed in a preservative solution, the liver segment rests in the bowl while a
team of assistants starts stitching Corey Gray's abdomen back together. Emre
walks calmly through a wooden door to the adjoining operating room, Room 10,
where Daniel Gray's abdomen is open wide.
A Death Sentence
Daniel Gray was 59 and awaiting the birth of a new grandchild when he learned of
his likely death sentence - a tumor the size of a tangerine growing in his
liver. The tumor was so big that it virtually knocked Gray off the waiting list
for a conventional transplant. An unassuming guy who looks remarkably like the
1970s TV character Archie Bunker, with none of Bunker's bite, Daniel Gray would
be the last person to ask anyone to sacrifice his life to save his own.
Before all of this started last summer, Gray barely knew his 29-year-old nephew
Corey, who - as the operation got underway - was asleep on the operating table
next door, his once tan and toned body facing a huge recovery, his young wife,
Maite, at home in Florida pinned to the phone while she cared for the couple's
young daughters, 8 and 1.
But what choice did Daniel Gray have?
Livers from deceased donors are allocated to patients with failing livers or
cancerous tumors that are smaller than Daniel Gray's. Gray started with two
strikes - his tumor was huge and the rest of his liver still worked. With that
combination of factors, odds were good he would die on the waiting list.
The operation has evolved over the past two decades, since doctors at the
University of Chicago successfully first split a liver from a deceased donor in
half and shared it with two critically ill children. The discovery that the
liver could regenerate completely within about eight weeks helped address two
problems: the shortage of donated livers and the fact that children often are
too small to accept a full adult liver.
With the success of the split-liver operation, doctors decided to try removing a
portion of liver from a living donor, usually a parent or grandparent, and
transplanting it into a dying child. The sacrifice of a parent's organ to save a
child did not present quite the ethical problems that adult-to-adult living
donor transplants would.
By the 1990s, though, the donor shortage made trying an adult-to-adult living
donor transplant all but inevitable.
The number of live-donor liver transplants grew rapidly until 2001, when more
than 500 operations were performed in the United States. Then, in January 2002,
Mike Hurewitz, a 57-year-old newspaper reporter, died at Mount Sinai Hospital in
New York after donating part of his liver to save his 54-year-old brother, Adam.
New York state health officials blamed the death on shoddy follow-up care at the
hospital, not on the surgery itself. Emre was working at Mount Sinai at the
time, but he said he was not involved in the Hurewitz case. The death cast a
pall, though, over the promise of live-donor transplants for adults and the
number of procedures performed in this country has never rebounded.
Almost 4,700 people in the United States received liver transplants from
deceased donors last year - including 19 in Connecticut. At the same time, only
200 liver transplants from living donors were performed nationwide in 2007.
Although recipients of partial livers seem to do well, experts say the practice
of medically robbing Peter to pay Paul should remain a last resort because it
can be dangerous to the donor.
"This is arguably the first surgical procedure where the person giving the liver
doesn't get a direct medical benefit," said Dr. John R. Lake, director of the
liver transplant program at the University of Minnesota Medical Center. About
3,450 live-donor liver transplants have been performed in the United States in
the past decade.
The adult-to-adult operation is so new that nobody is certain if there are
long-term risks for the donor. Both the donor and the recipient appear to wind
up with full-sized, fully functioning livers within two months of the
transplant. And donors examined 10 years after the surgery seem to recover full
physical performance and go on to live full lives, Lake said.
"We'll have to see over 20 or 30 years whether this holds up," Lake said.
Cocky, Caring
Gray's 41-year-old son, Danny, was the first potential donor tested. But the
anatomy of the younger Gray's liver made him ineligible.
Worried, Gray called his brother, Bill, in West Palm Beach, Fla., to talk it
over. Growing up in New York City the Gray brothers were close. But after
finishing up at All Hallows High School in the Bronx, they went their separate
ways - Bill settling in Florida and Daniel enrolling in night school at Fordham
University.
Daniel married young, became a successful trader in commodities futures on Wall
Street and had two children, first Danny and then Kelly, now 33. When his wife,
Diane, hit the jackpot on a slot machine in Atlantic City, the couple bought a
vacation home in Springfield, Vt.
The family prospered in New York until Daniel was in his late 30s and became
disabled by hemochromatosis, a disorder that occurs when too much iron builds up
in the liver.
The disease, often genetic, can lead to diabetes, heart problems, arthritis,
cirrhosis of the liver, liver cancer and other complications.
With Daniel unable to work, the Grays settled in Vermont, where Diane developed
a business building, renovating and managing rental properties. They saw the
Florida Grays at weddings, funerals and christenings.
Corey Gray had last seen his Uncle Danny more than a year ago, when Corey's
sister got married in Florida. At the time, Corey was busy building Credit
Assistance Network, a company he runs out of his home with his wife and younger
brother that helps clients across the country recover from identity theft and
repair spotty credit histories.
Later, when Daniel got sick, Bill Gray mentioned his brother's predicament to
Corey.
Corey offered to step up.
"I read about it. It's a little scary," Corey Gray explained. "But there's risks
in everything you do."
Daniel himself called Corey. He wanted to hear it straight from his nephew.
"I told him this is a big thing," Daniel Gray said.
Corey said he wouldn't have it any other way.
Bill Gray said that's typical of his middle son.
"I couldn't talk him out of him if I wanted to," Bill Gray said. "He's earned
his ticket to heaven."
After testing at Yale confirmed that Corey was a good candidate, he and his
family spent a week with Daniel and Diane Gray in Vermont.
Uncle and nephew discovered that even after the surgery, they would share more
than a liver.
"We became best friends," Daniel Gray said of Corey. "He's just like me. He's
strong-willed, kind, courageous, caring...," Gray said.
"Cocky," Corey added.
They laughed.
New Lease
With the lobe of Corey's liver in its ice and preservative bath, Dr. Antonios
Arvelakis, a transplant surgeon who followed Emre to New Haven from Mount Sinai,
trims a little fat and straightens the ends of two blood vessels and a duct that
will be used to plug the organ into Daniel Gray.
Next door, Emre makes the final snip that frees Daniel Gray's diseased liver and
tosses it unceremoniously into another blue bowl. It resembles a large pot roast
and lands with a splat.
It is 2:14 p.m. and scrub technologist Christine Nix wonders out loud what time
she'll get home tonight. She's been standing by the gurney holding Daniel Gray
since early in the morning and everyone's best guess is that it will be 8 p.m.
before she closes up the room and shuts off the lights.
Emre starts to sew. He figures he needs 45 minutes to an hour to attach the
hepatic vein and artery that will deliver Daniel Gray's blood to the liver that
a short while ago belonged only to Corey. Next, he'll attach the bile duct.
Although everything has gone flawlessly so far, Emre wants to see the yellowish
bile juice running through the duct before he declares the operation a success.
The liver is the largest gland in the body. It is also among the most important,
making bile to digest fats and keeping the blood clean by fighting infections
and ridding the body of poisons. Perhaps a measure of its importance is that the
liver is the only organ in the body that can regenerate itself.
By about 6 p.m., 11 hours after the procedure began, Corey Gray's liver tissue
is at work inside his uncle.
He has no regrets
Diane Gray finds her husband in his room on the 6th floor of Yale-New Haven's
West Pavilion - the surgical intensive care unit. He is still heavily sedated.
But in a room across the unit, Corey is waking up. His belly is sore, but he
feels much better than he thought he would.
Two days later, still a little dizzy from pain medication, Corey Gray puts on
gray pajamas and holds Emre's arm for support as he walks down the hall to the
room where his uncle is reclining in a chair.
Corey tells Diane that he has no regrets. He says he knew from the beginning
that everything would be fine, and it is.
Diane still worries about the risk of infection for Corey and the possibility
that Daniel's body will reject the new tissue, or worse yet, that the cancer
will come back, though so far everything has gone as well as anyone could have
hoped.
In Daniel's room, Corey lifts his pajama top to reveal the small stitched wound
that belies the gaping hole Emre cut two days earlier.
Daniel and Diane are at a loss for how they might thank their nephew. Now,
Daniel said, he considers the young man a son.
"I love this man," Daniel Gray said, reaching out to squeeze Corey's shoulder
and choking up just the slightest bit.
"He saved my life."
http://www.eagletimes.com/main.asp?SectionID=1&SubSectionID=4&ArticleID=6092

Pet Cat Parasite Linked to Schizophrenia Risk

2008-04-27 22:49:21

Pet Cat Parasite Linked to Schizophrenia Risk
By Michael Smith, North American Correspondent, MedPage Today
Published: January 18, 2008
Reviewed by Robert Jasmer, MD; Associate Clinical Professor of Medicine,
University of California, San Francisco
SILVER SPRING, Md., Jan. 18 -- Stronger evidence between infection with
Toxoplasma gondii, a protozoan parasite carried by pet cats, and the subsequent
onset of schizophrenia was reported here by military physicians.
In a case-control study, antibodies to T. gondii were associated with a 26%
increase in the risk of schizophrenia, according to David Niebuhr, M.D., M.P.H.,
M.Sc., of the Walter Reed Army Institute of Research, and colleagues.
When the researchers controlled for the time of the infection, the periods
just before and just after a diagnosis of schizophrenia were significantly
associated with the disease, at P=0.01 and P<0.01, respectively, they reported
in the January issue of the American Journal of Psychiatry.
About one in five Americans has antibodies to T. gondii, usually --
according to the CDC -- from contact with an infected cat.
The association between the parasite and schizophrenia has been reported
previously, Dr. Niebuhr and colleagues noted, but the studies have tended to be
small and to rely on a single serum sample taken after diagnosis.
In contrast, members of the U.S. military give blood when they join and
every two years thereafter and the samples are stored, allowing for longitudinal
comparison.
The current study is part of a series of nested case-control studies
looking at proposed associations between psychotic disorders and selected
infectious agents, Dr. Niebuhr and colleagues said.
The researchers identified 180 members of the military who were discharged
with a diagnosis of schizophrenia between 1992 and 2001 and compared each of
them with up to three matched healthy controls for the presence of antibodies to
the parasite.
Among the 180 cases, 82% had at least two blood samples available and 42%
had three, the researchers said.
Using microarray technology, the researchers looked for associations
between the disease and immunoglobulin IgG antibody levels to T. gondii, six
herpes viruses, and influenza A and B, as well as immunoglobulin M antibody
levels to T. gondii.
Analysis showed:
a.. In a multivariate model, both T. gondii and human herpesvirus-6 IgG
antibodies were significantly associated with schizophrenia, at P<0.01 for both.
The herpes data is being reported separately.
b.. The hazard ratio for schizophrenia for those with T. gondii IgG
antibodies was 1.26, with a 95% confidence interval from 1.13 to 1.41.
c.. When the researchers coded the samples according to the time when
antibodies were present, only the period six months before a diagnosis and the
time after were statistically significant.
d.. Antibody levels two or more years before a diagnosis were also
higher, but not significantly so.
One implication of the data is that the T. gondii infection may precede
schizophrenia, said co-author Robert Yolken, M.D., of Johns Hopkins Children's
Center.
"Until now, the only thing we could say is that some people with
schizophrenia also had been infected with toxoplasma at some point, but we
couldn't tease out which came first," Dr. Yolken said.
"With our current study, we were able to show that infection came first,"
he said.
But the time course is not consistent, pointed out Alan Brown, M.D., of
the New York State Psychiatric Institute at Columbia in an accompanying
editorial, because "no increased risk of schizophrenia was observed for other
intervals of time prior to diagnosis."
Dr. Brown said one of the study's strengths was its ability to use banked
serum samples, unlike most previous studies.
But, he noted, the question of whether lifestyle factors associated with
schizophrenia contributed to the findings remains unresolved, because the
elevated levels of T. gondii antibodies were seen both before and after the
diagnosis.
The researchers did not report any outside support for this study.
Dr. Niebuhr reported no financial conflicts.
Additional source: American Journal of Psychiatry
Source reference:
Niebuhr DW, et al "Selected infectious agents and risk of schizophrenia
among U.S. military personnel" Am J Psychiatry 2008; 165: 99-106.
Additional source: American Journal of Psychiatry
Source reference:
Brown A, "The risk for schizophrenia from childhood and adult infections"
Am J Psychiatry 2008; 165: 7-10.
http://www.medpagetoday.com/Psychiatry/Schizophrenia/dh/8022

National Awareness Week: Street Soccer Tournament and Karaoke -'Sing out about hep C'

2008-04-27 16:15:08

National Awareness Week: Street Soccer Tournament and Karaoke -'Sing out about
hep C'
During National Awareness Week at Musgrave Park eight soccer teams participated
in the tournament. Street soccer rules applied and lunch was provided. 100
participants and 14 services attended this event. Stalls from several different
organisations with information, and other activities surrounded the playing
fields. Zig Zag was funded to provide art activities outside the cultural
centre. Another community grant 'Sing out about Hep C' Karaoke was coordinated
by Queensland Injectors Health Network (QuIHN) in the park, with some
unforgettable numbers. Facts
about hep C were discussed between karaoke songs. Senator Andrew Bartlett also
attended the 5 A-Side Street Soccer. The awareness day a fun health promotion
event where both workers and clients played in the tournament, and enjoyed a
lunch together in the park. Quotes from people on the day included: 'I had a
really great time loved the lunch and soccer, lets do it again, it was the best
time I've had in ages!'; 'It was great I never thought I could get up in front
of a bunch of strangers and sing in front of them.ended up getting up twice' and
'We enjoyed being there, was a good opportunity to meet other people and
services while raising awareness about Hep C' (service provider)
http://www.flickr.com/photos/hepqld/2208530772/
CLICK HERE for photos: http://www.flickr.com/photos/hepqld/

Antiplatelet antibodies in patients with chronic viral hepatitis receiving interferon-alpha.

2008-04-27 11:24:39

Antiplatelet antibodies in patients with chronic viral hepatitis receiving
interferon-alpha.
Christodoulou D, Christou L, Zervou E, Katsanos K, Kitsanou M, Tsianos EV.
1st Department of Internal Medicine, Hepato-Gastroenterology Unit, Medical
School, University of Ioannina, Greece.
BACKGROUND/AIMS: The aim of this study was to investigate the possible role of
interferon-alpha in the development of antiplatelet IgG antibodies in patients
with chronic viral hepatitis B or C. METHODOLOGY: Ninety-one consecutive
patients with chronic viral hepatitis (51 with chronic hepatitis B and 40 with
chronic hepatitis C) were investigated for the presence of antiplatelet IgG
antibodies in their serum immediately prior to IFN-alpha therapy and after six
months of therapy. The method used was the solid phase red cell adherence test
(Immucor, Norcross, USA), which is a sensitive tracer of antiplatelet
antibodies. Some of the results were confirmed using an indirect
immunofluorescence test for the detection of antiplatelet antibodies RESULTS:
Overall, we found that antiplatelet antibodies were present in 37.54% (19/51) of
patients with chronic hepatitis B before IFN-alpha therapy and in 35.29% (18/51)
after therapy. Moreover, antiplatelet antibodies were found in 20% (8/40) of
patients with chronic hepatitis C before and after IFN-alpha therapy.
CONCLUSIONS: Therapy with IFN-alpha did not induce antiplatelet antibodies in
patients with chronic viral hepatitis B or C. Thrombocytopenia observed during
IFN-alpha therapy in our study was not due to the development of antiplatelet
antibodies.
PMID: 18019713 [PubMed - indexed for MEDLINE]
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=180197\
13&dopt=AbstractPlus

Muslims to be included under amended Human Organ Transplant Act

2008-04-27 09:05:49

Muslims to be included under amended Human Organ Transplant Act
http://www.todayonline.com/articles/233447.asp

Hepatitis C virus window-phase infections: closing the window on hepatitis C virus.

2008-04-27 03:05:55

Hepatitis C virus window-phase infections: closing the window on hepatitis C
virus.
Tuke PW, Grant PR, Waite J, Kitchen AD, Eglin RP, Tedder RS.
Department of Virology, UCLH, Windeyer Building; NTMRL, NBS, London, UK.
BACKGROUND: The detection of hepatitis C virus (HCV) infection is of major
importance for the prevention of transfusion-transmitted hepatitis. The testing
of donations by nucleic acid testing (NAT) techniques may not be feasible or
economic. Combined antigen and antibody assays are now available, and the
performance of two combined assays on window-phase donations is evaluated. STUDY
DESIGN AND METHODS: Three panels of antibody-negative plasma samples from HCV
NAT-only-positive donors were characterized for HCV status by quantitative
reverse transcription-polymerase chain reaction, a commercial third-generation
HCV antibody assay (Ortho), and combined antigen and antibody assays (Bio-Rad
MONOLISA and Murex). RESULTS: All 142 plasma samples were antibody negative by
Ortho third-generation HCV. A total of 112 samples (79%) were found to contain
HCV RNA; 32 were detected by the Bio-Rad assay (29%), whereas 56 (50%) were
detected by the Murex assay. Of 45 samples with viral loads of greater than
10(6), 32 (71%) were positive in the Bio-Rad combination assay and 44 (98%) were
positive in the Murex assay. Interestingly none of the 3a genotypes were
detected by the Bio-Rad MONOLISA, including eight donations that were greater
than 10(6) IU per mL. CONCLUSIONS: Combined antigen and antibody testing
provides a useful improvement on the sole reliance on antibody testing for
detection of HCV infection; however, it remains less sensitive than NAT for
detecting viremic donors and may be genotype susceptible.
PMID: 18194388 [PubMed - as supplied by publisher]
http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed&list_uids=181943\
88&dopt=AbstractPlus

'So grateful': Lives changed after receiving organs

2008-04-26 23:55:48

'So grateful': Lives changed after receiving organs
By Daniel Horgan for USA TODAY
Bill Jensen and the rest of the firefighters on Engine 24 were making progress
when a strong wind suddenly blew the fire up out of the canyon in Malibu,
Calif., that October day in 1996.
There was no time to run as a wall of flame engulfed them. When the inferno
passed, Jensen staggered to his feet. His clothing had disintegrated and his
skin was hanging off of him. More than 70% of his body had second- and
third-degree burns.
He surprised doctors by surviving, but recovery was slow and painful. Exposed
areas were covered with donated skin.
Forty surgeries and 11 years later, Jensen is grateful to the people of all
colors who donated parts of their bodies.
"I have skin on my back that's brown, skin that's yellow. It was supposed to be
temporary, but it took," Jensen, now 63, said recently from his home in Burbank,
Calif.
FIND MORE STORIES IN: Calif | Bill | Firefighter
He says the fire made him realize the importance of life "and everything I took
for granted."
He makes regular appearances at burn centers, his charred jacket and helmet from
the fire in tow. He also has made appearances with transplant activist Reg
Green. Green explains what donor families experience; Jensen talks about what
it's like for those who receive the donations.
ONE BOY: Father unearths stories of how son helped
"We talk to them, counsel them," he says. "No doctor out there can explain it
like another burn survivor. We show them there's life after burn."
His daughter's heart beats in his chest
Chet Szuber had been on the waiting list for a new heart for four years. He
could barely get up a flight of stairs. A predawn phone call in 1994 brought him
and his wife, Jeanne, grim news: Their daughter, Patti, had been gravely injured
in a car crash in Tennessee.
The Berkley, Mich., couple and other relatives gathered at the hospital in
Knoxville to wait and hope. Szuber remembered that Patti once told him she had
signed a donor card. The family soon received news that their precious Patti -
22 years old and just starting out as a nurse - was gone.
A transplant coordinator told Szuber he could have his daughter's heart. He
refused, saying it would be a constant reminder of his loss.
But he reconsidered. His family needed him; they urged him to accept the heart.
Now that heart beats inside Szuber, a revitalized man. The transplant is
believed to be the only child-parent heart donation in the world.
Szuber, who is now 73, is happy to think of his daughter every day. "She's still
part of the family."
He now has the stamina to run a Christmas tree farm, go hunting and enjoy
winters in Florida. He also speaks in public on behalf of organ donation.
"She didn't just help me," he says of his daughter. "She gave two blind ladies
vision, two other people her kidneys, I got her heart and another her liver."
The liver donation proved a lifesaver, Szuber says. The day Patti died, a
15-year-old girl in Arkansas had a liver transplant, and it was rejected. Her
outlook was bleak. She received Patti's liver and went on to graduate from high
school and get married.
"When we met her, the girl's mother grabbed my wife, and she wouldn't let go,
she was so grateful," Szuber says. "She just hung on and hung on."
Sisters breathing freely
Twins Anabel and Isabel Stenzel were born with cystic fibrosis, a disease that
attacks the lungs and the digestive system.
The disease made their family's daily life a torment. As they grew older, their
parents had to lay the girls on pillows and paddle their chests for as long as
five hours a day to loosen the thick mucus blocking their lungs. The girls
hacked continuously and had difficulty even walking.
They spent their childhoods in and out of hospitals with lung infections. At age
24, Anabel had only 30% of normal lung function and was put on oxygen.
Then in June 2000, her pager went off. A set of lungs was waiting for her. The
operation was a success, and Anabel went on to climb the famed Half Dome peak in
Yosemite National Park in California carrying a heavy backpack.
Isabel had a harder time of it, and in February 2004, her loved ones gathered at
the hospital preparing for the worst as she faded in and out of consciousness.
But a new set of healthy lungs became available just in time. She now swims
laps, hikes and does cross-country skiing.
Both twins now live in the San Francisco Bay Area and recently published a book
about their triumph over cystic fibrosis. In a twist, Anabel's body later
rejected her lungs; luckily, she received a new donated set of lungs in July.
"I'm busy and enjoying life again," Ana said recently after returning from a
trek in the Santa Cruz mountains. "To be able to hike again is a miracle."
Isabel, for her part, was excited to be on the DonateLife float in the New
Year's Day Tournament of Roses Parade in Pasadena, Calif.
http://www.usatoday.com/news/health/2008-01-21-organ-recipients_N.htm

Baby Girl Who Received Liver Transplant Dies

2008-04-26 10:37:36

Baby Girl Who Received Liver Transplant Dies
(WCCO) Ava Cowell, the little girl from Owatonna who had a liver transplant last
week, has died.
Ava was just 18-months old and was born with twisted intestines that eventually
led to liver failure.
Her mother placed an ad in the local paper to find a donor, and a local college
student came forward.
Sara Kaiser volunteered to be tested. She was a match, and a few weeks ago she
donated part of her liver to Ava.
Doctors said Ava was recovering well, but suddenly Sunday morning she suffered a
stroke and died.
The doctors tell Ava's mother, Erica, they do not believe the transplant caused
the stroke. They are performing an autopsy to find some answers.
Erika said she wanted to thank all the people who've left messages on the
family's Caring Bridge Web site; there are hundreds from around the world.
Erika also wants everyone to consider being a live organ donor.
http://wcco.com/health/liver.transplant.dies.2.634962.html

STUDIES HIGHLIGHT MRSA EVOLUTION AND RESILIENCE

2008-04-26 05:20:33

U.S. Department of Health and Human Services
NATIONAL INSTITUTES OF HEALTH NIH News
National Institute of Allergy and Infectious Diseases (NIAID)
<http://www.niaid.nih.gov/
Embargoed for Release: Monday, January 21, 2008, 5:00 p.m. EST
Contact: Ken Pekoc, 406-375-9690, <e-mail: pekoc@...
STUDIES HIGHLIGHT MRSA EVOLUTION AND RESILIENCE
Community-associated methicillin-resistant Staphylococcus aureus (CA-MRSA)
infections are caused primarily by a single strain -- USA300 -- of an evolving
bacterium that has spread with "extraordinary transmissibility" throughout the
United States during the past five years, according to a new study led by
National Institutes of Health (NIH) scientists. CA-MRSA, an emerging public
health concern, typically causes readily treatable soft-tissue infections such
as boils, but also can lead to life-threatening conditions that are difficult to
treat.
The study, from the National Institute of Allergy and Infectious Diseases
(NIAID) of NIH, resolves debate about the molecular evolution of CA-MRSA in the
United States. The findings rule out the previously held possibility that
multiple strains of USA300, the most troublesome type of CA-MRSA in the United
States, emerged randomly with similar characteristics. The study also offers a
hypothesis for the origin of previous S. aureus outbreaks, such as those caused
by penicillin-resistant strains in the 1950s and 1960s.
A second study led by the same NIAID scientists takes the issue of the evolution
of MRSA a step further, revealing new information about how MRSA bacteria in
general, including the USA300 group, elude the human immune system.
The first study, which appears online this week in the "Proceedings of the
National Academy of Sciences", found that the USA300 group of CA-MRSA strains,
collectively called the epidemic strain, comprises nearly identical clones that
have emerged from a single bacterial strain. It is the first time scientists
have used comparative genome sequencing to reveal the origins of epidemic
CA-MRSA. Frank R. DeLeo, Ph.D., at NIAID's Rocky Mountain Laboratories (RML) in
Hamilton, Mont., led the research.
"Scientists are pressing ahead quickly to learn more about how some MRSA strains
evade the immune system and spread rapidly," says NIAID Director Anthony S.
Fauci, M.D. "The information presented in these two studies adds important new
insights to that expanding knowledge base."
To understand how CA-MRSA is evolving in complexity and spreading
geographically, Dr. DeLeo's group sequenced the genomes of 10 patient samples of
the USA300 bacterium recovered from individuals treated at different U.S.
locations between 2002 and 2005. They then compared these genomes to each other
and to a baseline USA300 strain used in earlier studies. Eight of the 10 USA300
patient samples were found to have nearly indistinguishable genomes, indicating
they originated from a common strain. The remaining two bacteria were related to
the other eight, but more distantly.
Interestingly, of the eight nearly indistinguishable USA300 patient samples, two
caused far fewer deaths in laboratory mice than the others, highlighting an
emerging view that tiny genetic changes among evolving strains can profoundly
affect disease severity and the potential for drug resistance to develop.
"The USA300 group of strains appears to have extraordinary transmissibility and
fitness," says Dr. DeLeo. "We anticipate that new USA300 derivatives will emerge
within the next several years and that these strains will have a wide range of
disease-causing potential." Ultimately, Dr. DeLeo and his colleagues hope that
the work will lead to the development of new diagnostic tests that can quickly
identify specific strains of MRSA.
Fred C. Tenover, Ph.D., of the Centers for Disease Control and Prevention in
Atlanta (CDC) contributed the 10 USA300 clinical isolates from CDC's Active
Bacterial Core Surveillance system. Other study collaborators included Barry N.
Kreiswirth, Ph.D., of the International Center for Public Health (ICPH) in
Newark, N.J., and James M. Musser, M.D., Ph.D., of The Methodist Hospital
Research Institute in Houston.
The second report, which involved scientists from RML, ICPH and Vanderbilt
University Medical Center in Nashville, was recently published online in the
"Journal of Immunology". This study provides scientists with new details about
the complex mechanisms MRSA uses to avoid destruction by neutrophils, human
white blood cells that ingest and destroy microbes. When exposed to hydrogen
peroxide, hypochlorous acid (the active component of household bleach) or
antimicrobial proteins -- all killer chemicals released by neutrophils -- MRSA
senses danger, escapes harm and turns the tables on the white blood cells,
destroying them. Work is continuing in Dr. DeLeo's lab to understand how the
bacterium senses and survives attacks by neutrophils.
NIAID is a component of the National Institutes of Health. NIAID supports basic
and applied research to prevent, diagnose and treat infectious diseases such as
HIV/AIDS and other sexually transmitted infections, influenza, tuberculosis,
malaria and illness from potential agents of bioterrorism. NIAID also supports
research on basic immunology, transplantation and immune-related disorders,
including autoimmune diseases, asthma and allergies.
News releases, fact sheets and other NIAID-related materials are available on
the NIAID Web site at <http://www.niaid.nih.gov
The National Institutes of Health (NIH) -- The Nation's Medical Research Agency
-- is comprised of 27 Institutes and Centers and is a component of the U. S.
Department of Health and Human Services. It is the primary Federal agency for
conducting and supporting basic, clinical, and translational medical research,
and investigates the causes, treatments, and cures for both common and rare
diseases. For more information about NIH and its programs, visit <www.nih.gov

Task force recommends state collect more hepatitis data

2008-04-26 00:47:44

Task force recommends state collect more hepatitis data
Associated Press - January 21, 2008 9:35 PM ET
LINCOLN, Neb. (AP) - A task force aimed at curbing the spread of hepatitis C is
recommending the state collect more information on patients diagnosed in
Nebraska.
The report released last month by the Hepatitis C Education and Prevention Task
Force says state law requires all cases of hepatitis to be reported to the
Health and Human Services Department, but some information about the patients is
not being recorded.
The task force recommends a new system that includes a patient's age, gender,
race and zip code, among other things.
The task force was created by the Legislature in response to an outbreak of
hepatitis C in Fremont. Between March 2000 and December 2001, 99 patients of the
Fremont Cancer Center contracted the disease due to unsanitary conditions at the
facility.
http://www.kptm.com/Global/story.asp?S=7753220&nav=menu606_2_4

Scientists at University of Washington report research in acute hepatitis

2008-04-25 20:47:21

Scientists at University of Washington report research in acute hepatitis
According to a study from the United States, "Acute hepatitis C virus (HCV)
infection is often asymptomatic; thus, its epidemiology and natural history are
difficult to define. Acute HCV infection was identified on the basis of HCV
seroconversion within 1 year (n = 45), new anti-HCV seropositivity with clinical
acute hepatitis (n = 21), or HCV strain sequencing after an iatrogenic exposure
(n = 1)."
"Risk factors were assessed with a baseline questionnaire, and participants were
followed up prospectively with serial measurement of viral loads. Of 67 persons
with acute HCV infection, most were asymptomatic (64%) and injection drug users
(66%). Thirteen had an unknown mode of transmission; of these, 11 reported
high-risk sexual behavior. Ten acquired acute HCV infection within 3 months of
an iatrogenic exposure; 3 had confirmed iatrogenic infection, and 4 had no other
risk factors identified. The spontaneous viral clearance rate after 6 months of
infection was 18% (95% confidence interval, 11%-31%). The rate of viral
clearance varied significantly by sex (34% vs. 3% for women vs. men; P< .001).
High-risk sexual or iatrogenic exposures may be important contemporary risk
factors for HCV infection. The spontaneous viral clearance rate (18%) in this
contemporary study was similar to that reported for past studies of
transfusion-associated HCV infection," wrote C.C. Wang and colleagues,
University of Washington.
The researchers concluded: "Women were more likely to clear acute HCV infection
than men."
Wang and colleagues published the results of their research in the Journal of
Infectious Diseases (Acute hepatitis c in a contemporary US cohort: Modes of
acquisition and factors influencing viral clearance. Journal of Infectious
Diseases, 2007;196(10):1474-1482).
For additional information, contact C.C. Wang, University of Washington, Dept.
of Medical, Division Infectious Disease, 325 9th Avenue, Box 359908, Seattle, WA
98104, USA.
www.NewsRx.com

Hepatitis C virus affects organs

2008-04-25 12:22:07

Hepatitis C virus affects organs
Published: Jan. 21, 2008 at 5:34 PM
SOFIA, Bulgaria, Jan. 21 (UPI) -- Patients with chronic hepatitis C may develop
liver fibrosis and may be at risk for developing conditions affecting other
organs, Bulgarian doctors say.
The study, published in the World Journal of Gastroenterology, find these
conditions include fatigue, kidney impairment, type 2 diabetes, joint pain,
numbness or tingling of the skin and purpura -- discoloration caused by bleeding
under the skin.
Effective treatment of hepatitis C virus may prevent cryoglobulinemia -- the
presence of abnormal proteins in blood serum, the researchers say.
The study involving 136 hepatitis C patients at Alexandrovska Hospital in Sofia,
Bulgaria, find the risks of developing B-cell non-Hodgkin lymphoma higher in
cryoglobulin-positive patients --17.6 percent -- and lower -- 3.5 percent -- in
cryoglobulin-negative patients.
The study finds positive links between the presence of extra-hepatic
manifestations and age, female gender, duration of the infection, infection by
transfusion of blood and blood products and extensive liver fibrosis. Therefore,
elderly women with chronic hepatitis C and advanced liver fibrosis, who were
infected by transfusion during childbirth, are at the highest risk of developing
extra-hepatic manifestations of hepatitis C infection.
http://www.upi.com/NewsTrack/Health/2008/01/21/hepatitis_c_virus_affects_organs/\
2748/
http://www.earthtimes.org/articles/show/176555,hepatitis-c-virus-affects-organs.\
html

How Well Did Sylvia Browne Do With Her 2007 Predictions?

2008-04-25 07:54:09

How Well Did Sylvia Browne Do With Her 2007 Predictions?
Hits/Misses/False Alarms/Correct Rejections : 1/0/16/0
New drugs for HIV, AIDS, Hep C that really help patients
Once again - there are several predictions here:
Prediction 1) New Drugs for HIV AIDS patients? N/A. I thought this might be a
hit, since the FDA approved Raltegravir in October, 2007. It was widely known,
however, that Merck Pharmaceutical was awarded a patent for this class of drug
in October, 1996, and the studies that were used to support FDA approval were
published in 2003. Since there was foreknowledge available when Sylvia made this
prediction, the best we can say is this is a push.
Prediction 2) Was a new Drug for Hep C patients announced in 2007? False Alarm:
A Google news search for "hepatitis C drug approval" returned only 220 results,
and none of these appeared to be announcements of new drug approvals for Hep C
in 2007.
http://www.smugbaldy.com/?p=110

Patient, province battle over bill

2008-04-25 05:32:47

Patient, province battle over bill
Retired teacher wants Ontario to pay for expensive, cutting-edge liver
transplant that saved his life
Allison Hanes, National Post Published: Tuesday, January 22, 2008
Adolfo Flora listened quietly in court yesterday as lawyers dispassionately
debated whether Ontario's publicly funded health care system had an obligation
to save his life eight years ago with an expensive, cutting-edge operation
overseas.
While no one disputes the 58-year-old retired Toronto teacher would not be alive
today had he not paid the costs of his own partial liver transplant from a
living donor in England, he and the province have been locked in battle over who
should pick up the bill for the procedure that Ontario was just a month away
from first performing and now offers regularly.
In a case that tests the limits of how far the public purse should go in
providing or paying for treatment not available within the province, Mr. Flora
is appealing two earlier decisions not to reimburse more than $450,000 he spent
out of his own pocket in 2000 to have a piece of his brother's liver
transplanted in his body.
Mr. Flora's lawyers argued in the Ontario Court of Appeal yesterday that when
the government has a monopoly on health care, it has a legal and constitutional
duty to ensure patients have access to lifesaving therapy elsewhere if it is not
offered at home, as long as the procedure is medically sound, a generally
recognized treatment for the condition, legal and ethical.
"We're not talking about run-of-the-mill treatment, we're talking about
life-and-death situations," said Mr. Flora's lawyer, Mark Freiman. "When the
government monopolizes health care and effectively seals off the exits so that
access to private care is illusory to all but the wealthiest ... the government
is responsible for the impairment of the right to life and security of the
person."
Ontario counters that the public system with finite resources cannot fund every
available procedure. Also, Janet Minor, a lawyer for the provincial
Attorney-General's office noted that it was doctors and not the government who
determined Mr. Flora was not suitable for a transplant in the province at the
time he needed it, and Ontario did not stand in the way of his efforts to get it
elsewhere.
"The appellant obtained the treatment he wanted," she told the three-judge
panel. "Clearly there is nothing the government did to deprive Mr. Flora of his
ability to obtain treatment.... What the appellant seeks in this case is an
economic benefit for himself."
The facts that underpin the bureaucratic wrangling are dramatic and
heartbreaking.
In 2000,Mr. Flora was diagnosed with advanced liver tumours and given six months
to live -- a result of hepatitis C he contracted in the 1970s through a
transfusion with tainted blood during routine surgery.
Rejected as a candidate for transplant with a deceased person's liver because of
his end-stage cancer, Mr. Flora began exploring other options, including a
transplant with an excised piece of his brother's organ.
The London Health Sciences Centre in southern Ontario was looking for candidates
to perform the operation on adults after success in children. But Mr. Flora was
deemed unsuitable for the first attempt because he first required a procedure to
shrink his tumours and the prospects of his survival were decent but not ideal
enough to justify the risks to his brother.
With time running out to save his life, Mr. Flora emptied his savings, took a
loan from a friend, sold his mother's home and mortgaged his house to afford a
partial liver transplant at a leading hospital in the United Kingdom.
He not only survived to see his 13-year-old son grow up, he is now cancer-and
hep C-free.
But Mr. Flora emerged with tears in his eyes from the courthouse yesterday
afternoon, saying each time he sits in court to hear arguments forces him to
relive one of the most traumatic times of his life, reminds him of the $200,000
he still owes for his medical treatment, not to mention his eight-year legal
battle.
"It feels unbelievably bad," he said, as his wife, Marijana Flora, tried to
comfort him. "It comes back as if it was yesterday -- the hopelessness."
ahanes@...
http://www.nationalpost.com/news/canada/story.html?id=253872

2nd Annual CHAIN Day on the Hill, Thurs., Feb. 7, 2008, 9 am, Des Moines, IA

2008-04-24 20:28:43

Dear HEPCUNITED Listserv Members:
Hello and Happy Martin Luther King, Jr. Day 2008!
I'm cross-posting this announcement to a variety of relevant email lists,

Three Rivers acquires hep C drug Infergen from Valeant

2008-04-24 17:11:25

Three Rivers acquires hep C drug Infergen from Valeant
Saturday, January 19, 2008 16:00 IST
Cranberry Township, Pennsylvania
Three Rivers Pharmaceuticals, LLC acquired hepatitis C drug Infergen from
Valeant Pharmaceuticals International for $91 million.
Infergen or consensus interferon is a bio-optimised, selective and highly potent
type 1 interferon alpha originally developed by Amgen and launched in the United
States in 1997. It is currently indicated as monotherapy for the treatment of
adult patients suffering from chronic hepatitis C viral infections with
compensated liver disease and is dosed three times per week.
"Adding Infergen to our growing portfolio is very exciting," said Donald J.
Kerrish, RPh, president and chief executive officer, Three Rivers. "This
purchase is only a beginning for Three Rivers' continuous strategy to increase
its product offerings through product acquisition and internal product
development of pharmaceutical therapies."
Three Rivers Pharmaceuticals is a privately held company headquartered in
Cranberry Township, Pennsylvania and focuses on specialized therapies including
hepatitis C therapies. Three Rivers is the first drug company to focus on the
needs of the emerging specialty market. With its unique experience and
understanding of the complex challenges of treating chronic, difficult diseases,
Three Rivers is a valuable partner in the healthcare community.
http://www.pharmabiz.com/article/detnews.asp?articleid=42600

Chronic hepatitis C virus infection: Prevalence of extrahepatic manifestations and association with cryoglobulinemia in Bulgarian patients

2008-04-24 03:03:53

World J Gastroenterol 2007 December 28;13(48): 6518-6528
Chronic hepatitis C virus infection: Prevalence of extrahepatic manifestations
and association with cryoglobulinemia in Bulgarian patients
Diana V Stefanova-Petrova, Anelia H Tzvetanska, Elisaveta J Naumova, Anastasia P
Mihailova, Evgenii A Hadjiev, Rumiana P Dikova, Mircho I Vukov, Konstantin G
Tchernev
Abstract
AIM: To assess the prevalence of extrahepatic manifestations in Bulgarian
patients with chronic hepatitis C virus (HCV) infection and identify the
clinical and biological manifestations associated with cryoglobulinemia.
METHODS: The medical records of 136 chronically infected HCV patients were
reviewed to assess the prevalence of extrahepatic manifestations. Association
between cryoglobulin-positivity and other manifestations were identified using
c2 and Fisherâs exact test. Risk factors for the presence of extrahepatic
manifestations were assessed by logistic regression analysis.
RESULTS: Seventy six percent (104/136) of the patients had at least one
extrahepatic manifestation. Clinical manifestations included fatigue (59.6%),
kidney impairment (25.0%), type 2 diabetes (22.8%), paresthesia (19.9%),
arthralgia (18.4%), palpable purpura (17.6%), lymphadenopathy (16.2%), pulmonary
fibrosis (15.4%), thyroid dysfunction (14.7%), Raynaudâs phenomenon (11.8%),
B-cell lymphoma (8.8%), sicca syndrome (6.6%), and lichen planus (5.9%). The
biological manifestations included cryoglobulin production (37.5%),
thrombocytopenia (31.6%), and autoantibodies: anti-nuclear (18.4%), anti-smooth
muscle (16.9%), anti-neutrophil cytoplasm (13.2%) and anti-cardiolipin (8.8%).
All extrahepatic manifestations showed an association with
cryoglobulin-positivity, with the exception of thyroid dysfunction, sicca
syndrome, and lichen planus. Risks factors for the presence of extrahepatic
manifestations (univariate analysis) were: age ⥠60 years, female gender,
virus transmission by blood transfusions, longstanding infection (⥠20 years),
and extensive liver fibrosis. The most significant risks factors (multivariate
analysis) were longstanding infection and extensive liver fibrosis.
CONCLUSION: We observed a high prevalence of extrahepatic manifestations in
patients with chronic HCV infection. Most of these manifestations were
associated with impaired lymphoproliferation and cryoglobulin production.
Longstanding infection and extensive liver fibrosis were significant risk
factors for the presence of extrahepatic manifestations in HCV patients.
INTRODUCTION
Hepatitis C virus (HCV) is associated with a wide spectrum of clinical and
biological extrahepatic manifestations[1-3]. In chronically infected patients,
the virus can trigger an impairment in lymphoproliferation with cryoglobulin
production[3]. Mixed cryoglobulinemia with its complications (skin,
neurological, renal, and rheumatologic) is the most significant extrahepatic
manifestation of HCV infection[4,5]. Mixed cryoglobulinemia can evolve into
B-cell lymphoma in up to 10% of the patien[6,7].
Various non-organ specific auto-antibodies, present in low titers, are noted
during the course of chronic HCV infection[8,9], but they do not influence the
clinical profile of the disease[10]. Chronic HCV infection has been linked to
two skin disorders, porphyria cutanea tarda and lichen planus, particularly with
the involvement of the oral cavity[11,12]. Other possible HCV-associated
diseases are type 2 diabetes mellitus[13], thrombocytopenia[14] and pulmonary
fibrosis[15]. The sicca syndrome, although different from the typical
Sjogrenâs syndrome, also appears to be associated with hepatitis C virus
infection[16,17].
It is unclear whether HCV plays a pathogenic role in the development of thyroid
dysfunction[18]. It is possible, that this extrahepatic manifestation of HCV is
related to treatment with interferon rather than the virus[19].
The most common risk factors associated with extrahepatic manifestations of HCV
infection are older age, female sex, and extensive liver fibrosis[8]. Several
reports from different parts of the world suggest that hepatitis C virus affects
not only the liver, but other tissues, organs and systems as well.
Lymphoproliferative disorders, triggered by the virus, are the most significant
extrahepatic manifestations in South-Eastern Europe, where Bulgaria is located.
The aim of the present study was to determine the prevalence of various
extrahepatic manifestations of chronic HCV infection in our country, to analyze
which extrahepatic manifestations are associated with impaired
lymphoproliferation and cryoglobulin production, and to identify which patients
are at greater risk of developing extrahepatic manifestations.
In our clinical practice, several patients present with extrahepatic
manifestations even in the absence of a clearly defined clinical picture of
hepatic illness. It is important to recognize these manifestations in order to
make an early diagnosis and to initiate therapy in a timely manner.
MATERIALS AND METHODS
Patients
We included 136 Bulgarian patients who were referred to the Department of
Internal Diseases and Gastroenterology of the University Hospital Alexandrovska
during the period from 1996 to 2004. The main reason for patient referral was
elevated liver enzymes. The diagnosis of HCV infection was made by the presence
of anti-HCV antibodies (third generation ELISA) and a positive test for HCV-RNA
(Cobas Amplicor HCV Monitor Test, v. 2.0, Roche Diagnostics). HCV genotypes were
identified by direct sequence analysis (Immunogenetics, Belgium) in 60
patients[20]. HBsAg and HIV positive patients were not included in the study.
Liver biopsy was performed in all patients. The data was collected before the
patients were started on any specific treatment.
Methods
Patient records were reviewed to assess the presence of the following clinical
manifestations: fatigue, arthralgia, Raynaudâs phenomenon, palpable purpura,
paresthesia, renal impairment (proteinuria, creatinine above the upper normal
limit, and hypertension), sicca syndrome (mouth and eyes), thyroid dysfunction
(TSH level below or above the normal range of 0.31-5.00 mU/L), lichen planus
(skin and oral lesions), type 2 diabetes mellitus (hyperglycemia, treated by
hypoglycemic drugs), pulmonary fibrosis (X- ray examination), lymphadenopathy,
and lymphoma. The enlargement of peripheral lymph nodes was detected by
palpation. The enlargement of mediastinal lymph nodes was detected by X-ray
examination, and abdominal lymphadenopathy was detected by abdominal
ultrasonography. Chest X-ray and abdominal ultrasonography were obligatory exams
carried out routinely in all patients admitted to the hospital. Lymph node
enlargement was confirmed by computerized tomography. The diagnosis of lymphoma
was based on morphologic evaluation of lymph node tissue in the patients with
co-existing peripheral lymphadenopathy, and by bone marrow biopsy. Histological
analysis of the enlarged mediastinal and/or abdominal lymph nodes was not
performed because patients refused to provide informed consent for invasive
diagnostic surgical procedures.
Biological data obtained from for each patient included the presence or absence
of cryoglobulins, thrombocytopenia, and auto-antibodies: anti-nuclear (ANA),
anti-smooth muscle (ASMA), anti-neutrophil cytoplasm (ANCA), and
anti-cardiolipin (ACL). The platelet count was obtained from the patientsâ
files. Thrombocytopenia was defined as platelet count ⤠110.109/L.
Cryoglobulins were detected by the Winfield method[21]. Twenty milliliters of
venous blood was obtained from each patient in a pre-warmed (37â) syringe,
allowed to clot at 37â and the serum was separated by centrifugation. The
supernatant was incubated at 4â for 8 d and examined daily for
cryoprecipitate. Indirect immunofluorescence was used for the detection of ANA,
ASMA, and ANCA (IFA/ Binding Site). A positive test for ANA and ASMA was defined
as a titer ⥠1/40, and for ANCA ⥠1/20. Anticardiolipin antibodies (ACL-IgG
and ACL-IgM) were detected by ELISA (Orgentec).
The following demographic and epidemiologic data was collected: age (less or â¥
60 years), sex, the suspected duration of the infection (less or ⥠20 years),
an alcohol intake (less or ⥠50 g/d), and the mode of infection. Questions
regarding the most relevant identifiable HCV risks factors were asked, including
transfusion of blood and blood products, intravenous drug use, surgical
procedures, dental manipulation associated with bleeding, and needle stick
injury in health workers. In patients with a past history of transfusions of
blood and blood products, it was assumed that HCV infection was caused by
contaminated blood and blood products.
The histological abnormalities in liver biopsy specimens, obtained blindly
(Hepafix 1.4 mm, B. Braun, Germany), were scored according to the METAVIR
system[22]. Each liver biopsy sample was assessed for the stage of fibrosis and
grade of histological activity. Liver fibrosis was staged on a scale of 0 - 4,
where 0 = no fibrosis, 1 - portal fibrosis without septa, 2 = few septa, 3 =
numerous septa without cirrhosis, and 4 = cirrhosis. Necroinflammatory activity
was graded on a scale of A0-A3, where A0 = no histological activity, A1 = mild
activity, A2 = moderate activity, and A3 = severe activity.
Statistical analysis
Quantitative data was expressed as mean ± SD. Univariate analysis used the c2-
square or Fisherâs exact test for comparison of qualitative values. An
assessment of the characteristics of HCV infection (demographic, epidemiologic,
histologic), associated with the presence of extrahepatic manifestations, was
performed using univariate and multivariate logistic regression analysis.
Statistical significance was assessed at P < 0.05. Adjusted odds ratio (OR) and
95% confidence intervals (CI) were derived from the coefficient of the final
multivariate logistic model. The analysis was performed with SPSS v.12.0
statistical software.
RESULTS
A total of 136 patients with chronic HCV infection were included in the study,
comprising of sixty-two (45.6%) males and seventy-four (54.4%) females. The mean
age of the patients was 50.16 ± 16.08 years (range 20-80 years). Forty-six
patients (33.8%) were ⥠60 years of age. Thirty-four patients (25.0%) had a
history of alcohol intake (⥠50 g/d).
The suspected duration of infection was ⥠20 years in 70 patients (51.5%) and
< 20 years in 66 patients (48.5%). Genotyping was performed in sixty patients,
fifty-two (87%) had genotype 1, 4 (6.5%) genotype 3, and 4 (6.5%) had mixed
genotypes. Metavir scores for inflammatory activity were: A0 in 5 patients
(3.7%), A1 48 (35.3%), A2 46 (33.8%), and A3 37 patients (27.2%). Metavir scores
for fibrosis were: F0 in 12 patients (8.8%), F1 16 (11.8%), F2 25 (18.4%), F3 27
(19.9%), and F4 in 56 patients (41.1%). Twenty patients (14.7%) were intravenous
drug users. Thirty-seven patients (27.2%) were possibly infected during surgical
procedures. History of dental manipulation with bleeding was detected in 18
patients (13.2%). Needle stick injury was found in 11 health workers (8.1%).
Fifty of the 136 patients (36.8%) had previously been transfused with blood or
blood products. Thirty-eight of these 50 patients were women, who received blood
transfusions during childbirth, and in 33 of these patients the duration of
infection was ⥠20 years. Nineteen of these 38 women were ⥠60 years of age
at the time of presentation. Twenty of these patients had Metavir stage F4, and
10 (10/38) were Metavir F3.
The overall prevalence of individual extrahepatic manifestations is shown in
Table 1. At least one extrahepatic manifestation was identified in 104 patients
(76.5%). The clinical manifestations, in descending order of prevalence were:
fatigue (59.6%), kidney impairment (25.0%), type 2 diabetes mellitus (22.8%),
paresthesia (19.9%), arthralgia (18.4%), palpable purpura predominantly of the
lower extremities (17.6%), lymphadenopathy (16.2%), pulmonary fibrosis (15.4%),
thyroid dysfunction (14.7%), Raynaudâs phenomenon (11.8%), B-cell
non-Hodgkinâs lymphoma (8.8%), sicca-syndrome (6.6%), and lichen planus
(5.9%). All patients with sicca-syndrome had xerostomia, but none had
xerophtalmia. Three patients had skin lesions of lichen planus and five had oral
lesions. The biological manifestations, in descending order of prevalence were:
cryoglobulin (37.5%), thrombocytopenia (31.6%), ANA (18.4%), ASMA (16.9%), ANCA
(13.2%), anti-cardiolipin antibodies (8.8%). The ANA, ASMA and ANCA were present
in low titers (⤠1/160). None of the patients in the study had clearly defined
clinical features of autoimmune liver disease.
The relationship between the presence of cryoglobulins and other extrahepatic
manifestations is shown in Table 2.
Cryoglobulin-positivity was related to the following clinical manifestations:
fatigue, purpura, Raynaudâs
phenomenon, kidney impairment, type 2 diabetes mellitus, arthralgia,
paresthesia, pulmonary fibrosis, lymphadenopathy, and B-cell lymphoma.
Cryoglobulin-positivity was also associated with the following biological
manifestations: thrombocytopenia, and positive ANA, ASMA, ANCA, and
anti-cardiolipin autoantibodies. Three female patients (⥠60 years at the time
of the study) with advanced liver fibrosis and history of blood transfusions
during childbirth, first became cryoglobulin positive and subsequently developed
lymphadenooathy over two, three, and five years respectively. Histological
analysis of the removed lymph nodes showed low-grade non Hodgkin B-cell
lymphoma. The present study did not show any association between the presence of
cryoglobulins and thyroid dysfunction, sicca syndrome, and lichen planus (Table
2).
The demographic, epidemiological and liver histological features associated with
the extrahepatic manifestations were analyzed by univariate and multivariate
logistic regression analysis. The results are shown in Table 3. Using univariate
logistic regression analysis there was a positive correlation between the
presence of extrahepatic manifestations and female sex, older age (⥠60
years), duration of the infection (⥠20 years), transfusion of blood and blood
products, and extensive liver fibrosis (Metavir F4). Univariate analysis did not
show any correlation between extrahepatic manifestations and the mode of
transmission: intravenous drug use (8.7% vs 34.4% for the patients without
extrahepatic manifestations), surgical procedures (27.9% vs 25.5%), dental
manipulation with bleeding (12.5% vs 15.6%), and needle stick injury in health
workers (7.7% vs 9.4%). Univariate logistic regression analysis did not show an
association between extrahepatic manifestations and high grade of inflammatory
activity in the liver (Metavir A3) and alcohol intake of ⥠50 g/d (Table 3).
Multivariate logistic regression analysis showed that the most significant
association was between extrahepatic manifestations and long duration of
infection and advanced liver fibrosis (Table 3).
DISCUSSION
The present study on 136 patients with chronic HCV infection, showed a high
prevalence of extrahepatic clinical and biological manifestations. At least one
manifestation was present in 76.5% of the patients. These results are similar to
those reported in a large prospective French study, in which 74% of 1614
patients with chronic HCV infection had at least one extrahepatic clinical
symptom[23]. By univariate analysis (Table 3) five risks factors were found to
be related with clinical and biological extrahepatic manifestations in our
patients: female sex, age ⥠60 years, transfusion of blood and blood products,
duration of the infection ⥠20 years, and extensive liver fibrosis. By
multivariate analysis (Table 3) the most significant risks factors were the
longstanding infection and extensive liver fibrosis.
Fatigue was the most frequent non-specific clinical symptom in chronic HCV
infection[2]. About 60% patients in this study considered fatigue as the initial
or worst symptom of their disease (Table 1). In a prospective study of 1614
individuals with chronic HCV infection, fatigue was present in 53% of
patients[24]. It is not known what causes fatigue in chronic HCV infection. The
elevated fatigue score[25] is probably related to an increase in serum leptin
levels which may interact with serotonin neurotransmission[26]. Fatigue can be
considered a part of the clinical picture of HCV-associated cryoglobulinemia,
since this symptom was seen more frequently in cryoglobulin-positive than in
cryoglobulin-negative patients (92.2% vs 40.0%, OR 17.6, 95% CI 5.8-53.4).
Hepatitis C virus escapes immune elimination in chronically infected
patients[5]. In such patients, CD81-mediated activation of B cells triggers
mono-oligoclonal B-lymphocyte expansion and the appearance of various
HCV-related autoimmune disorders, including the syndrome of mixed
cryoglobulinemia[6,27]. A recent meta-analysis showed that 44% patients with
chronic HCV infection had circulating immune complexes with cryoprecipitating
properties[28]. In the present study, cryoglobulins were isolated in 51 of the
136 (37.5%) patients, but we were not able to define the type of cryoglobulin in
all the cases. However, there was considerable evidence to suggest that HCV was
associated with type â¡ mixed cryoglobulinemia, with clinical features of
vasculitis which mainly affects the small sized blood vessels of the skin,
joints, nerves, and kidneys[5,29]. Skin is the most frequently involved target
organ[30]. In previous studies, palpable purpura was observed in 10% to 21%
patients with clinically manifested cryoglobulinemic syndrome[11], and in 7% of
all HCV infected patients[8]. We observed palpable purpura, predominantly over
the lower extremities, in 24 of the 136 patients (17.6%), with much higher
prevalence in cryoglobulin-positive than in cryoglobulin-negative patients
(41.2% vs 3.5%, OR 19.1, 95% CI 5.3-68.8). Symptoms related to Raynaudâs
phenomenon were observed in 16 of the 136 patients (11.8 %), with higher
prevalence in cryoglobulin-positive than in cryoglobulin-negative patients
(25.5% vs 3.5%, OR 9.3, 95% CI 2.5-34.7). Pruritus, Raynaudâs phenomenon, and
palpable purpura of the lower extremities are the main skin manifestations of
chronic HCV infection, which is consistent with the findings of previous
studies[11,31,32]. However, considering the high frequency of cryoglobulins in
HCV patients, severe symptomatic mixed cryoglobulinemia with the clinical
presentation of diffuse vasculitis was rare, seen in only 1% of
cryoglobulin-positive patients[23]. Polyarteritis nodosa-type of clinical
presentation was not observed in the present study.
Previous studies have shown that arthralgia is present in 44.7% patients with
HCV-associated mixed cryoglobulinemia[33] and in 19% of all HCV infected
patients[8]. The clinical picture may mimic rheumatoid arthritis, especially
since rheumatoid factor was present in 71% of cases[34], but there was no joint
destruction, and antibodies to cyclic citrullinated peptides, which are highly
specific for rheumatoid arthritis, were absent[35]. In the present study,
arthralgia was present in 18.4% patients, with higher prevalence in
cryoglobulin-positive than in cryoglobulin-negative patients (33.3% vs 9.9%, OR
4.8, 95% CI 1.8-12.2). None of the patients in the present study met the
diagnostic criteria for rheumatoid arthritis.
Peripheral nervous system involvement is a chara-cteristic feature of the more
severe forms of clinically apparent HCV-cryoglobulinemia[3]. Peripheral
neuropathy, manifested by paresthesia, was noted in 17% of all HCV patients[23]
and in 37% to 80% of the patients with HCV-associated mixed
cryoglobulinemia[36,37]. We observed paresthesia in 19.9% of all HCV infected
patients, with a higher prevalence in cryoglobulin-positive than in
cryoglobulin-negative patients (41.2% vs 7.1%, OR 9.2, 95% CI 3.3-25.0). Sensory
nerves are mainly affected in patients with HCV-associated mixed
cryoglobulinemia[38]. Neuropathological data shows axonal degeneration,
differential fascicular loss of axons, signs of demyelinization, and
small-vessel vasculitis with mononuclear cell infiltrates in the perivascular
areas[38,39].
Chronic HCV infection can trigger the immune complex syndrome of cryoglobulin
deposition and type-1 membranoproliferative glomerulonephritis[40]. Diffuse
membranoproliferative glomerulonephritis is found in 83% of cryoglobulinemic
renal disease[41]. Misiani et al[42] found a high prevalence of HCV antibodies
(66%) and HCV RNA (81%) in the serum of patients with cryoglobulinemic
glomerulonephritis. Only 2% of the controls (patients with noncryoglobulinemic
glomerulopathies) had HCV antibodies[42]. In Japan, the virus was found in 60%
patients with membranoproliferative glomerulonephritis[43]. Clinically obvious
renal disease was present in 20% to 30% of cryoglobulin-positive patients with
HCV infection[7,23,44]. In 55% of these patients, the findings include mild
proteinuria, mild microscopic hematuria and mild renal insuffiency[45,46].
Arterial hypertension is present in 80% patients[45,47]. In the present study,
34 of the 136 HCV patents (25%) had mild proteinuria, hypertension and serum
creatinine levels above the upper limit of normal. These symptoms are related to
HCV-cryoglobulinemia, since their prevalence was higher in cryoglobulin-positive
than in cryoglobulin-negative patients (45.1% vs 12.4%, OR 5.5, 95% CI
2.3-12.7). Renal abnormalities during the course of HCV infection are usually
diagnosed in most patients between the fifth and sixth decades of life, and
occur slightly more frequently in women than men[45,48]. Risk factors for the
development of severe renal failure at follow-up of these patients include age,
serum creatinine level, and proteinuria at the onset of renal disease[41].
Cryoglobulin-related nephropathy has been reported to progress to chronic renal
failure requiring dialysis in 10% patients[44], but the overall survival at 10
years was 80%[41].
Case-control studies show an increase in the prevalence of type 2 diabetes
mellitus (14.5% to 24%) in patients with chronic HCV infection[13,49,50]. These
findings have been confirmed in a representative sample of the general
population in the USA[51]. Reports from diverse geographic regions have shown a
2- to 10- fold increase in the prevalence of diabetes in patients with HCV
infection compared to liver disease controls[51-53]. The highest prevalence (up
to 50%) was noted in patients with HCV-associated liver cirrhosis[54-56]. Our
findings are consistent with these studies. We found type 2 diabetes in 31 of
the 136 HCV patients (22.8%), which is higher than the prevalence (8.0%) in the
general population of our country. Antonelli et al[57] found a higher prevalence
(14.4%) of type 2 diabetes in HCV patients with mixed cryoglobulinemia compared
to HCV-negative age-matched controls (6.9%) and the general population in
northern Italy (2.5%-3.3%). We also found a higher prevalence of type 2 diabetes
in cryoglobulin-positive than in cryoglobulin-negative patients (35.3% vs 15.3%,
OR 3.0, 95% CI 1.3-6.8). Given the biology of HCV, which is both hepatotropic
and lymphotropic, an immune-mediated mechanism may explain the raised prevalence
of type 2 diabetes in HCV-patients with mixed cryoglobulinemia[57]. Recent
studies suggest that insulin resistance mediated by proinflammatory cytokines,
rather than a deficit in insulin secretion, is the primary pathogenic mechanism
involved in the development of type 2 diabetes in HCV infection[58].
Soresi et al[59] detected abdominal lymphadenopathy in 22% patients with HCV
infection and persistently normal transaminases, and in 38% of those with high
alanine aminotransferase values. Multiple logistic regression analysis showed a
significant relationship between abdominal lymphadenopathy and histological
abnormalities of the liver, presence of HCV RNA in the serum and gamma-globulin
levels[59]. Lymphadenopathy in chronic HCV infection indicates a possible
interaction between viral antigens and the immune system[60]. This interaction
may be complicated by autoimmunity, cryoglobulinemia and B cell malignancy[60].
In the present study, lymphadenopathy was seen in 22 of the 136 HCV patients
(16.2%), with a higher prevalence in cryoglobulin-positive than in
cryoglobulin-negative patients (35.3% vs 4.7%, OR 11.0, 95% CI 3.4-35.1).
Epidemiological studies have confirmed a link between HCV infection and B-cell
non Hodgkinâs lymphoma[61-63]. In a recent meta-analysis, the prevalence of
HCV infection in patients with B-cell non Hodgkinâs lymphoma was approximately
15%, which is much higher than the prevalence of HCV in the general
population[64]. Clonal B cell proliferation was observed in patients with a
longer duration of HCV infection, type â¡ cryoglobulin, and
vasculitis[5,65,66]. Over 90% patients who developed non-Hodgkin lymphoma had
type â¡ cryoglobulins[64]. About 10% patients with HCV mixed cryoglobulinemia
evolved into lymphoma[6]. In a series of 231 Italian patients with mixed
cryoglobulinemia, 20 developed B-cell lymphoma after a mean of 8.8 years[7]. The
overall risk of non-Hodgkin lymphoma in patients with cryoglobulinemic syndrome
was 35 times higher than that in the general population[64]. Our findings are in
agreement with the results reported from Italy[67]. In the present study, B-cell
non Hodgkinâs lymphoma was diagnosed in 12 of the 136 HCV patients (8.8%) with
higher prevalence in cryoglobulin-positive than in cryoglobulin-negative
patients (17.6% vs 3.5%, OR 5.8, 95% CI 1.5-22.7). The exact prevalence of HCV
associated lymphoma in our country may be much higher, since patients with
abdominal and/or mediastinal lymphadenopathy (without enlargement of peripheral
lymph nodes) did not provide consent for invasive diagnostic surgical
procedures. The appearance of cryoglobulins, peripheral lymphadenopathy and
low-grade B-cell lymphoma in 3 women during follow-up suggested that benign
lymphoproliferation, triggered by the virus, can evolve into malignant B cell
lymphoma. It is possible that genetic and environmental factors[68] play a role
in the higher prevalence of HCV-associated lymphoma in South-East Europe,
including our country, compared to Northern Europe[69]. Based on the available
evidence it appears that HCV is an important risk factor for B-cell malignancy
in areas with a high prevalence of HCV infection[5], which in our country is
1.3%.
Ueda et al[70] noted a higher prevalence of anti-HCV antibodies in Japanese
patients with idiopathic pulmonary fibrosis compared to the general population.
The prevalence of idiopathic pulmonary fibrosis in anti-HCV positive patients
was 9.4%[71]. HCV patients with mixed cryoglobulinemia have been found to have
asymptomatic interstitial lung fibrosis diagnosed by chest X-ray and
high-resolution computed tomography[15]. Pulmonary fibrosis in HCV-related
cryoglobulinemia is perhaps triggered by local deposition of circulating
HCV-containing immune complexes[72]. In the present study 21 of the 136 HCV
patients (15.4%) showed pulmonary fibrosis on routine X-ray examination; the
frequency of pulmonary fibrosis was higher in cryoglobulin-positive than in the
cryoglobulin-negative patients (25.5% vs 9.4%, OR 3.2, 95% CI 1.2-8.6). These
findings need further confirmation with the use of more sophisticated
radiological techniques.
Serum autoantibodies are commonly seen in patients with chronic HCV infection.
In a study by Lenzi et al[9] the overall prevalence of non-organ specific
autoantibodies was significantly higher in anti-HCV positive patients compared
to healthy subjects, and HBsAg positive controls (25% vs 6% and 7%
respectively). Several studies have evaluated the prevalence of ANA and ASMA,
with figures ranging from 4.4% to 41%[8,10,34] and 7% to 66%
respectively[23,34,73]. In the present study, positive ANA and ASMA tests were
seen in 18.4% and 16.9% patients respectively. The anti-ANA and ASMA antibodies
were found in low titers (⤠1/160), and were detected predominantly in the
cryoglobulin-positive patients (Table 2). However, none of the patients had a
clearly defined clinical picture of autoimmune l